Sunday, May 22, 2011

silence

my advice? keep a dustpan in your bag - some days it's all about cleaning up messes, many of which you didn't make yourself.

the worst is this one:
MD: i know you're seeing Mr.S later - just wanted you to know that we had 'the talk' this morning and we're going to be getting hospice set up for him.

RN to Mr.S: so, i know you had a big talk with the doctor this morning - how are you feeling about stopping treatment?

Mr.S: wait...what? what do you mean?

RN, groaning and reaching for dustpan...

turns out MD used words like transition and hospice and comfortable and change in focus and supportive care but forgot to used words like die, or dying, or death, or not treating the cancer anymore or end of life. it's easier than you might think to fall victim to unending euphemisms and fail to get your point across. it's especially easy to do so if you've done most of the talking. in this case, if the MD had asked the right questions, or any questions, she would have known that her message hadn't gotten through.

when it's done well, it's a beautiful thing. when MD has the time and patience and skill, and emotional intellect to treat 'the talk' as an exchange and a time to gather information from the patient rather than viewing it as a speech he's giving, that's when the cornerstone of end of life care can be carefully placed so that it can be built upon. and it's all about what they say and what they don't say and how their body speaks and whether or not they can manage silence.

like the MD i saw who spoke and explained and suggested and connected and advised, and then fell silent. the last words leaving his lips like a stone dropped down a well - the silence of falling. the silence needs to be listened to and honored. this is where the hearing happens and the processing begins. out of this particularly long pin-drop silence came the most important fact of the day:
i'm not ready
we all needed to know this in order to take care of this patient, and we wouldn't have without the silence. that's not to say that it's all easy from there - and it's beautiful and awful all at once.

the pained expressions and broken hearts and furrowed brows and weary family members and quart of shed tears will shift something in the soul, and haunt the car ride home and lead to the inevitable 'why do i do this/this is exactly why i do this ' conflict that is my signature, and will most importantly, make me physically incapable of being patient with the person who asks if i could be 'snack mom' at tonight's soccer game. RN: wait...what?

12 comments:

gloriamundi said...

Respect, RN, as always, and thanks for precious insights and useful warnings.

Pam Brewer said...

OMG! I'm an oncology nurse, have been for 13 or so years. I love the way you don't pretty up things. I don't have many friends because most people don't understand the depth and height of roller-coaster emotions I experience each day. They don't get why I don't have much patience for the trivial. Why I want to dig in my garden in silence instead of yakking on the phone, why I want to spend the week-ends soley with my husband (kids are grown and moved far away), why I blurt out uncomfortable statements about life and death. Keep writing, please!

Susan S said...

You say it like we think it!

moonflower said...

I am not a nurse or a medical person at all.

You write beautifully. I went through a hospice with my beloved grandmother last year and traumatic ends with my best friend and his wife a few years ago. You so totally get it right.

If only everyone just said the truth. Then we can prepare.

Bless you.

cm

Phil said...

Just a survivor here.

Thank you!

I read your blog to remember how I didn't care as much that it hurt, my hair fell out, or I threw up (again) because somebody was there to help and care for me with knowledge and compassion. Just sharing in your experience reminds me not to waste what I have. In my years since treatment I have realized that my 5 months of hell was what you choose to do everyday. Amazing!

So Thank You ALL!

breast reduction surgery said...

Yes sometimes you feel it is just big talk and gimmick all about the medical advancement when the patient at home is not improving.

liz said...

Hi OncRn,
My name is Liz and I have been reading your blog for a few months now. I hope that you have not written for a while because things suddenly got better and you have less stress to deal with and patients are doing better as well. I am truly sorry that you have to witness so much pain and that sometimes it lingers after the work day, after the fact. You are a symbol of care and kindness, I can only hope that someone will show you that as well.
That said, since your blog is a great resource for someone going through cancer I wanted to reach out to you to see if you were interested in a new online social support network (that I am the community manager of!) called I Had Cancer. It is a new and free social support network focused on connecting people based on experiences with cancer so that they can easily communicate with one another and share information. I would love to tell you more if you are interested, so please let me know! Because I was so struck by your writing I would love to send you an early-access pass with extra invites for others you may know going through this journey.

Either way, thank you so much for your writing. Take care and best regards.
-Liz@ihadcancer.com-IF anyone is interested in I Had Cancer please email me.

Michelle said...

I'm an adult BMT nurse. I hear what you're saying. Sometimes, in my practice, especially when our bone marrow unit has cared for a patient for an extended period of time (transplant patients are in and out over months, even years sometimes), that when it comes time for "the talk" that patients and family members interpret that as the hospital staff (especially nursing) does not want to take care of them anymore. While that is not the case, I think it is important to emphasize that medical treatment does not always yield to longevity. Honestly, I have seen patients who did better with minimal CMO type care than they probably would have with active treatment. Also, I wish palliative care/pain management would do a brief consult with the patient at diagnosis instead of waiting until the patient has received "the talk". Maybe if more thought went into some of this, we wouldn't have to carry our dust pans anymore.

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ed said...

whoever you are, thank you!!!!!
I don't remember ever wanting to share a meal with a person who I know nothing about on a physical level, and yet, through the kindness of a heart examined, sense a spiritual knowing...like I've explored and been nurtured at the deepest parts of your soul.
I hope you write again! Or maybe, you are writing something bigger!!!

Sheri said...

Graduating in three weeks (RN student). Still enjoying your writing.