Tuesday, August 10, 2010

full-time job

there are appointments to make
and drivers to find

there's remembering not to eat or drink after midnight
next tuesday

there's collecting your urine for 24 hours
and handing it off to someone who takes it
with a gloved hand and a smile

there's remembering what meds you're on
and making the spreadsheet to keep track of them all
and remembering to take them each the right way

there's consenting to having bits of yourself taken and tested
blood, tissue, marrow

there's the rash
the infected port
the swollen joint
the peeling palms
the mouth sores
the immobilizing nausea
the weakness
the 'cannot peel your own face off the pillow' fatigue
the absent libido
the hiccups for 3 days straight
the sadness

there's being your own advocate
the googling, the questioning, the reading

there is the energy expended in hoping for the best
and preparing for the worst

there's the waiting
for your bloodwork results
for the surgeon to round
for the doctor to call
for the scan to be read
for the healing to begin

there's figuring out how to answer the question
'so, how are you?'

7 comments:

LeighSW said...

Well said.

emmy said...

Well, that about nails it.

Barbara Anne said...

So very and sadly true.

Hugs!

Nicki said...

There's the loving
and the being loved
the testing
and the test result
the determination to carry on
the knowing you can't do what you used to
and the hope

Yes... the hope

even when it should be hopeless

As the wife of a patient with unresectable pancreatic cancer let me say on behalf of all your patients and their families

THANK YOU

Your blog tells me what sort of nurse you are.. the caring, the loving... the gentle kind.

It shows the reality without draining hope. Thank you so much for the comfort you give me.

Headstrong said...
This comment has been removed by the author.
Headstrong said...

This is LOVELY.
Thank you for sharing.
May I have your permission to share a link to this post/site in a post on my blog? This piece is so very insightful, and I should like to direct readers to your site to enjoy more of your musings.
Thank you again, and I wish you, and your patients, a good day, with an even better tomorrow in store. Headstrong

oncRN said...

Headstrong: feel free to re-post and many thanks for the kind words